EIP is delighted to announce that a NEW accredited free-to-access training on Spotting the Signs of Metachromatic Leukodystrophy (MLD) has been added to the Online Academy Training Platform. We encourage you to take the training and share the registration link, below, with your colleagues and networks. All those who successfully complete the training (and pass the 3 short tests with a mark of 80% or above) can claim 2 hours of EACCME credits and a certificate will be issued by EIP.  
     
     
 

EARN 2 EACCME CREDITS TODAY

  
  The online course is accredited by the European Accreditation Council for Continuing Medical Education (EACCME). The credits for the users of the course are 1 European CME credit (ECMEC®) for every hour (60 minutes of actual e-learning excluding introductions, etc.) of use, provided that the users have completed a module and have passed the relevant assessment.  
     
     
 

COURSE DESCRIPTION

  
  Metachromatic Leukodystrophy (MLD) is a rare hereditary disease characterized by the accumulation of fats called sulfatides. This causes the destruction of the protective fatty layer (myelin sheath) surrounding the nerves in both the central nervous system and the peripheral nervous system, ultimately affecting intellectual and motor function. Early-onset clinical manifestations are often overlooked or confused with other conditions, confusing non-trained HCPs at first contact, resulting in misdiagnosis, wrong referral routes and delays in the early start of treatment. Delays in starting treatment significantly affect the conditions’ development and the patient’s health and quality of life. This delay in referral and treatment must be overcome. The 2-hour course covers the basics of MLD, as well as practical neurological case studies that offer the opportunity to connect the theory with the practice and treatment options.  
     
 

PRESENTERS

  
    Dr Nicole I Wolf, Ass. Professor, Department of Child Neurology, Center for Childhood White Matter Diseases, Emma Children's Hospital, Amsterdam University Medical Center, Vrije Universiteit Amsterdam, and Amsterdam Neuroscience, (Netherlands)  
         
    Dr Simon Jones, Consultant in Paediatric Inherited Metabolic Disease, Senior Lecturer, The University of Manchester (UK)  
         
    Prof. Ingeborg Kraegeloh-Mann, Professor of Paediatrics, Managing Director University Children's Hospital, Medical Director Department of Paediatrics and Developmental Neurology, Eberhard Karls University Children Hospital Tübingen (Germany)  
     
    Dr Francesca Fumagalli, Neurologist, Pediatric Immunohematology Unit and Department of Neurology San Raffaele Hospital, Milan (Italy)  
     
     
 

TARGET AUDIENCE

  
  This educational activity is designed for an international audience of General Pediatricians, General Practitioners, Pediatric Neurologists, and other physicians and healthcare professionals with an interest in neurology.  
     
     
         
 

LEARNING OBJECTIVES

  
  ✓ Understand the key signs and early symptoms of MLD in Children - with a knowledge of the hereditary causes, disease characteristics and what should trigger a referral  
     
  ✓ Identify the main neurological presenting sign and understand the impact of delays on the start of treatment on the condition’s development  
     
  ✓ Understand the main misdiagnosis and wrong referral routes for early-onset MLD in children  
     
  ✓ Have a comprehensive overview of the effective clinical management and established and emerging treatments for children with MLD  
         
         
     
         
  The Course consists of 3 lessons featuring videos of recorded lectures, further readings and assessments.