Please explore the links below to scientific societies and organisations that can provide you with further information and resources in the field of Metachromatic Leukodystrophy (MLD), metabolic disorders, rare diseases and treatment development. We will add further organisation links as the programme develops.
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SIMMESN (Italian Society of Metabolic Diseases and Newborn Screening) |
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SINPIA (Italian Society of infantile and adolescent neuropsychiatry) |
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SFNP (Société Française de Neuropédiatrie) |
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SFIEM (Société Française des Erreurs Innées du Métabolisme) |
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SFDN (Société Française de Dépistage Néonatal) |
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CETL (Comité d'Evaluation du Traitement des maladies Lysosomales) |
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NVKN (De Nederlandse Vereniging voor Kinder Neurologie - Dutch Paediatrics Neurology Society) |
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ESNLT (Vereniging tot bevordering van onderzoek naar Erfelijke Stofwisselingsziekten in het Nederlandse taalgebied - Dutch speaking SSIEM involving NL and Flanders part of Belgium) |
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British Paediatric Neurology Association |
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Medics 4 Rare Diseases |
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British Society of Blood and Marrow Transplantation and Cellular Therapy |
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British Inherited Metabolic Diseases Group |
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GNP (Society for Neuropediatrics - Germany) |
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APS (Working Group for Pediatric Errors of Metabolism) |
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EPNS (European Paediatric Neurology Society) |
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Child Neurology Society |
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EBMT (European Society for Blood and Bone Marrow Transplantation) |
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SSIEM (Society for the Study of Inborn Errors of Metabolism) |
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EAN (European Academy of Neurology) |
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AAN (American Academy of Neurology) |
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The Global Leukodystrophy Initiative (GLIA) |
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Please explore the links below to family groups that can provide you with further information and resources in the field of Metachromatic Leukodystrophy (MLD), metabolic disorders, rare diseases and treatment development.